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Mar 8

Written by: host
3/8/2012

 

CALENDAR NOTICE                            
 
What:                         Angelman Syndrome Foundation Walk
 
When:                        Saturday, May 19
                                    Registration at 8 a.m.; 5K walk starts at 9 a.m.
 
Where:                       Rob Fleming Park in The Village of Creekside Park
                                    6055 Creekside Forest Dr., The Woodlands
 
Who:                          Angelman Syndrome Foundation
 
Why:                         To support medical research, support, education and advocacy for families affected by Angelman Syndrome, a    
                                   neurological disorder that is largely misdiagnosed as either autism or cerebral palsy. 
 
                                   Individuals with AS are developmentally delayed, have difficulty with balance and walking, sometimes laugh 
                                   inappropriately and experience seizures. Most individuals cannot speak, and they will require care for their entire 
                                   lives.
 
                                   Fundraising more important than ever before as research has revealed possible treatment/cure symptoms of 
                                   Angelman’s.
 
Registration:            Participants are encouraged to register in advance online at www.angelman.org/walk/walk-information/houston-tx or by calling 1-800-432-6435, or they can register the day of the event.
 
Information:              For more information about the Walk, contact Adrienne Foret at (936) 266-4058 or aforet@sleh.com. For more information about the Angelman Syndrome, visit www.angelman.org.  
 
Media Contact:       
Liz Grimm, APR
Liz Grimm Public Relations
Office: (281) 363-9090 / Cell: (713) 515-9102
LizGrimmPR@gmail.com

 

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